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Chickens and eggs
Looking for the cause(s) of Dysautonomia is a vastly complex ordeal. I have POTS as well as NCS/NMH, which can further muddy the waters. There is no way to be absolutely certain what the main cause...
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To Err is Expected
iBP Graph It is definitely a challenge getting a reading when my pulse pressure (PP) drops really low. No method or cuff will get a reading every time when it is really low. I was asked about how to...
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Blood Pressure Chart – Normal Blood Pressure Range
Blood Pressure Chart – Normal Blood Pressure Range. Interesting information on blood pressure; good basic background reading with charts for the newly diagnosed POTSie/Dusautonomia patient. Posted with...
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POTS and Quality of Life
POTS is a particularly vile condition, especially when it is very severe. Mine is about as severe as it gets. I have ups and downs, good days and bad days. Bear in mind that a POTS good day is worse...
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Dysautonomia Information for Loved Ones
This is a great article to share with family and friends to help them understand what it is like to live with Dysautonomia HELPING YOUR LOVED ONES UNDERSTAND DYSAUTONOMIA What is Dysautonomia/POTS:...
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Pulse Pressure: the ignored vital statistic
I admit from the beginning of this post that pulse pressure monitoring is one of my pet topics, so there is a bit of personal bias here. Having said that, I firmly believe every Dysautonomia patient...
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Crazy POTSy crap…
Yesterday was a horrible day for me. I had another pulse pressure drop with tachycardia, and this time had awful nausea along with tingling and numbness in my face, tongue and throat. I actually...
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Pulse Pressure in POTS/Dysautonomia Research Group
Research Study Invitation As you may already know, if you are a regular here, I have been writing a series of posts on pulse pressure drops and spikes after discovering that there is virtually NOTHING...
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Crazy POTSy crap, episode two…
Nuff said: [108/70 mmHg 91 bpm, 83 MAP, 38 PP, laying down at 12:55pm] [87/74 mmHg 146 bpm, 78 MAP, 13 PP, standing one min at 02:02pm] [135/67 mmHg 74 bpm, 90 MAP, 68 PP laying down one min at...
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A typical POTSy moment…
Just a peek at one POTSy moment… Posted with Blogsy via my iPad Mini Filed under: Autonomic Function, Dysautonomia, NMH/NCS/VVS, POTS, Syncope Tagged: blood pooling, blood pressure, bp, charts,...
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POTS 101
POTS 101: a fellow POTSie blogger's very clear explanation of POTS. Great foundation! via POTS 101. Posted with Blogsy via my iPad Mini Filed under: Autonomic Function, Dysautonomia, POTS, Syncope...
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Methylenetetrahydrofolate Reductase (MTHFR)
This is a very interesting, intensive sight, well worth a thorough study, in my opinion. A Facebook friend reminded me about it tonight, so I am taking the opportunity to pass it along. It may take...
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Cause of postural tachycardia syndrome found
Partial autonomic dysfunction that is more pronounced in the legs than in the arms can cause the postural tachycardia syndrome via Cause of postural tachycardia syndrome found | theheart.org These...
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United We Tilt!
I have a favor to ask you all. PLEASE either do this simple test at home or ask your doc to do it when you go for your next physical exam…I strongly advocate the ‘Poor Man’s Tilt Test’ be a part of...
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Jaded no more…
Awesome news!!!!! I got a fat folder from the Veteran’s Administration in the mail Thursday… drumroll, please…. I am now at 100% (service connected) on my VA Disability!!! Technically 170% – I was at...
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Zebraologist, anyone?
Even the venerable Dr. House got POTS wrong…what he described as POTS is actually NCS/NMH. What the heck is she blogging about, you may wonder? Lemme ‘splain. Did you see the episode where the groom...
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Primer on the Autonomic Nervous System: my take
Got POTS? NCS/NMH? Read this medical text…study it. It’s heavy reading for most people, I expect, but I think it’s worth diving in if the contents affect your life to the extent that Dysautonomia of...
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Neurally Mediated Syncope
* I definitely didn’t faint just once! I do also have POTS, though…Filed under: Dysautonomia, NMH/NCS/VVS, Research, Syncope Tagged: NCS/NMH, neurally mediated hypotenstion, Neurocardiogenic syncope,...
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The River Denial
After all this time, I still occasionally talk myself into thinking Dysautonomia and it’s crappy comorbidites are a bad figmoid of my imagination, a night terror, or a narcoleptic hypnagogic...
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